On Friday, December 20, 2023, Jenna Weets, Morrison, IL wrote, “Thanks to a couple of [husband] Brad’s wonderful coworkers, there will be a benefit for Jeg on Sunday, February 18, [2024,] in Carbon Cliff, IL.” The times are 1:00 to 6:00 p.m., at Silvis Eagles Club (Fraternal Order of Elks 1839), 911 Mansur Avenue.
“It’s been six years since our last benefit for Jeg, and his medical account is low. The last few years, he has had a lot of medical expenses with multiple scopes, surgery, and hospital stays. Every treatment day costs $70 in deductibles, plus food, tolls, parking, hotel stays, etc.”
Email jennaweets@gmail.com to donate raffle or Silent Auction items. The GoFundMe account is for monetary donations: https:gofund.me/e6b658a9; Jeg’s Fight Against NPC.
Jeg Weets was diagnosed December 15, 2017, with Niemann Pick Disease Type C (NPC.) It is a rare, fatal, progressively debilitating syndrome. There is no approved medical treatment.
Brad, Jenna, sister Claire, family members, and friends are united in a single mission. Based on the advice of one of Jeg’s doctors, they are determined to “make memories” for their gregarious, lovable son–at every instance. Amid his treatments, pain, and limitations Jeg continues to be exposed to wonderful opportunities; meet his idols; be encouraged in his fight against NPC by student and adult fans. He is always delighted by these adventures.
Lifted by this goal and a fervent support base, the Weets family allows Jeg to bear witness to approaching life in the face of adversity.
His mother continued, “We are trying to give Jeg memories and…a full life of experiences, before NPC takes walking and traveling from him. If you have ever talked to Jeg, you know he has a lot of plans and ideas in his little head!
“We thank everyone for their support over the last six years. This would be so much harder without the love and support of so many.
“We also want to thank everyone who participated in the meal train the last two weeks. It was a huge help!”